Jill Levy-Fisch, President of The Save Babies Through Screening Foundation, awarded Global Genes RARE Champion of Hope in Advocacy Award

Jill Levy-Fisch, President of The Save Babies Through Screening Foundation, was awarded the prestigious Global Genes RARE Champion of Hope in Advocacy Award, this past weekend. The 2014 Champions of Hope Gala was held at the Hyatt Regency in Huntington Beach, California. As a longtime advocate for the cause of universal Newborn Screening, Jill was honored for her unwavering commitment to the prevention and treatment of rare disease. Patients, advocates, and other members of the rare disease community attend this yearly event, to honor pioneers in the fields of research, advocacy, and science. Global Genes is one of the leading rare disease patient advocacy organizations in the world, whose mission is to eliminate the challenges of rare disease by building awareness, and providing critical connections and resources to positively impact affected patients and families.

About the Save Babies Through Screening Foundation

Comprised of volunteers whose lives have been touched by newborn screening (NBS), Save Babies Through Screening Foundation is the only advocacy organization in the country dedicated to Newborn Screening. SBTS aims to educate parents, pediatric healthcare providers and policy makers about available comprehensive Newborn Screening, the importance of obtaining positive or other test results requiring follow-up actions within five days of birth and the importance of prompt confirmatory testing and treatment/management when required. The Foundation’s mission is to ensure that every newborn in the U.S. be screened successfully, effectively and comprehensively.

Save Babies Through Screening Foundation programs are supported by public contribution’s that help us deliver vital education, community services, and advocacy programs free of charge. Every gift, whether large or small, helps us protect children from the effects of these detectable and treatable disorders.

CONTACT: Save Babies Through Screening Foundation
http://www.savebabies.org
P. O. Box 42197
Cincinnati, OH 45242
Toll Free: 1-888-454-3383

Contact Information

Jill Levy-Fisch

President

The Saves Babies Through Screening Foundation

Contact via E-mail