Newborn Screening - A Story Of Hope
Every year thousands of newborns leave the hospital with undetected diseases that result in either death or a seriously limiting medical condition. It’s our mission at Save Babies Through Screening Foundation to raise public awareness so that compreh
Every year thousands of newborns leave the hospital with undetected diseases that result in either death or a seriously limiting medical condition. It’s our mission at Save Babies Through Screening Foundation to raise public awareness so that comprehensive and effective screening of newborns becomes routine at hospitals everywhere. All too often, we share the devastation that undetected diseases can have on newborns and their families. Recently we had the wonderful opportunity to interview PKU Advocate, Kevin Alexander whose story highlights the importance and value of newborn screening in an individual’s life.
Kevin is the author of a short documentary entitled “My PKU Life,” which tells his very moving personal
http://www.savebabies.org/blog/2013/03/q-a-with-pku-advocate-kevin-alexander/
About the Save Babies Through Screening Foundation
Comprised of volunteers whose lives have been touched by newborn screening (NBS), Save Babies Through Screening Foundation is the only advocacy organization in the country dedicated to Newborn Screening. SBTS aims to educate parents, pediatric healthcare providers and policy makers about available comprehensive Newborn Screening, the importance of obtaining positive or other test results requiring follow-up actions within five days of birth and the importance of prompt confirmatory testing and treatment/management when required. The Foundation’s mission is to ensure that every newborn in the U.S. be screened successfully, effectively and comprehensively.
Save Babies Through Screening Foundation programs are supported by public contribution’s that help us deliver vital education, community services, and advocacy programs free of charge. Every gift, whether large or small, helps us protect children from the effects of these detectable and treatable disorders.
CONTACT: Save Babies Through Screening Foundation
http://www.savebabies.org
P. O. Box 42197
Cincinnati, OH 45242
Toll Free: 1-888-454-3383
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PKU- Contact Information
- Jill Levy-Fisch
- President
- Save Babies Through Screening Foundation
- Contact via E-mail
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