Newborn Screening Petition - To Maintain SACHDNC

The SACHDNC is crucial to the ongoing public deliberations over newborn screening as it is the only national venue where parents can contribute their first-hand experiences and perspectives.


WEBWIRE – Wednesday, February 20, 2013

The SACHDNC is crucial to the ongoing public deliberations over newborn screening as it is the only national venue where parents can contribute their first-hand experiences and perspectives. Closing of the Committee at this juncture would have disastrous results as it is midway through important deliberations regarding Pompe Disease. The findings of these deliberations may be crucial to preventing needless loss of life in infants across the country. Any lapse of the Committee’s activities could literally be the difference between life or death, so it is vitally important that it’s term be extended until Congressional reauthorization occurs.

We encourage the participation of any concerned individuals by signing this important petition. Please visit the link below to access the petition:

https://www.change.org/petitions/u-s-heath-resources-and-services-administration-maintain-sachdnc-ensure-it-meets-before-4-24-13-and-extend-its-term

About Save Babies Through Screening Foundation:

Save Babies Through Screening Foundation is a nonprofit organization dedicated to ensuring that every baby born in America is comprehensively screened for of all conditions detectable by newborn screening, which if detected early and treated promptly, will allow these babies to live normal and productive lives. The Foundation mission includes education, advocacy, and support for newborn screening at all levels. For more information about the organization or pulse-ox screening, contact them using the information below.

CONTACT: Save Babies Through Screening Foundation
www.savebabies.org
P. O. Box 42197
Cincinnati, OH 45242
Toll Free: 1-888-454-3383



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 Infant Health
 Newborn Health
 SACHDNC
 Pompe Disease
 Bloodspot Test
Contact Information
Jill Levy-Fisch
President
Save Babies Through Screening Foundation
Contact via E-mail


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